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The Care We Need

The unpaid job most of us end up doing for someone we love, set out in plain steps.

The everyday work of caring for someone at home.

Eating, Drinking and Weight Loss: When to Stop Cooking Harder

By Maura Kinsella  |  Medically reviewed by Dr Nadia Farhat, MBBS, MRCP

Updated July 13, 2026

Losing weight without meaning to is a sign to report, not a fact of getting older. The measurement that matters is the trend over weeks rather than one number on one day, and the point to ask for help is much earlier than most carers think: when the loss starts, not when it becomes visible. A carer who weighs someone weekly and writes it down is producing information nobody else in the system can obtain.

The scale of the problem in people living at home is easy to underestimate. In BAPEN’s 2022 UK Survey of Malnutrition Risk and Nutritional Care, 45 percent of all adults screened across UK health and care settings were at risk of disease-related malnutrition, and the highest figure by setting was for people screened in their own homes, at 56 percent, against 55 percent in care homes and 44 percent in hospitals1. That is a proportion of adults screened in a voluntary survey rather than a population prevalence, and the distinction matters enough that this page will repeat it.

My own version of this was slow and avoidable. My mother lost weight through the summer after her coronary bypass surgery in April 2022, and my response was to cook harder. Better meals, more of them, and a quiet resentment building every time a plate came back barely touched, because it felt like a verdict on me rather than information about her. Nobody weighed her between the discharge and the following spring, and I did not think to. The kitchen scales and the notebook arrived far too late and turned out to be the single most useful thing I did that year.

This article sits under caring for a parent at home and applies the method in spotting when someone is getting worse to one subject.

Why is unintended weight loss a warning sign rather than part of ageing?

Because it is a symptom with a list of causes behind it, in the same way a fall is. Appetite does change with age, but weight coming off without anybody trying is a change, and changes have reasons: an illness that has not declared itself, a medicine, a mouth or tooth problem, pain, constipation, low mood, dementia progression, or a swallow that has stopped working properly.

The reason it gets absorbed rather than reported is that it happens slowly and everybody has a ready explanation. She is not as active. He never ate much. They are getting on. Those explanations are all plausible and none of them is a diagnosis.

What makes a carer useful here is the comparison, not the judgement. Nobody expects you to know why. You are the only person who can say that a jumper that fitted at Christmas is now hanging off, that a wedding ring turns freely when it used to stick, that the weekly shop has been the same size for a month and the bin tells a different story. Record it with dates in keeping a care file. A dated line beats an adjective in any appointment.

How common is this, and what do the figures actually measure?

Common in the screened population, and the qualification is the important half of the sentence. BAPEN’s 2022 survey found 45 percent of all adults screened at risk of disease-related malnutrition, with 24 percent of those screened underweight and 26 percent showing unplanned weight loss, and nutritional care plans in place for 62 percent, up from 50 percent in 20211.

By condition, the figures ran to 62 percent for cancer, 50 percent for gastrointestinal conditions, 48 percent for respiratory conditions, 45 percent for frailty and 43 percent for neurological conditions1. Read those as a ranking of who is most likely to be at risk rather than as a probability for one person.

Say the caveat every time you use these numbers, because a great deal of secondary writing does not: they are proportions of adults who were screened in a voluntary survey, which is not the same thing as a share of the population. They tell you that malnutrition risk is common among people who came into contact with services and got screened. They do not tell you what proportion of older people at home are affected, and no figure in this survey should be rendered as one.

Who should be screening, and how often?

Somebody should be, routinely, and in most cases nobody is. This is the most useful thing on the page to quote at an appointment.

The ESPEN 2022 practical guideline on clinical nutrition and hydration in geriatrics is unambiguous: all older people, including those who are overweight and obese, shall routinely be screened for malnutrition with a validated tool, on admission to a geriatric institution and at regular intervals thereafter, for example every three months in stable long-term care residents and at least annually in general practice (good practice point, strong consensus at 100 percent)2. “At least annually in general practice” is a sentence worth carrying with you if nobody has weighed the person you look after in a year.

The tool most likely to be used in the United Kingdom is MUST, the Malnutrition Universal Screening Tool, which BAPEN describes as the most commonly used screening tool in the UK, used in hospitals, primary care and care homes and supported by the British Dietetic Association, the Royal College of Nursing and the Registered Nursing Home Association3. You do not need to know how it is scored. You need to know it exists and to ask whether it has been done.

What you can do at home is simpler and, over weeks, more informative: the same scales, the same time of day, the same clothing, once a week, written down with the date. Take the sheet to the appointment. That single habit converts an impression into evidence, and it is the thing I did not do for the best part of a year.

What numbers does a dietitian work from?

Two, and knowing them changes the quality of the conversation you can have. They are targets for a clinician to adjust, not instructions for a carer to implement.

The ESPEN 2022 guideline gives a guiding value for energy intake in older people of 30 kcal per kg body weight and day, adding that the value should be individually adjusted for nutritional status, physical activity level, disease status and tolerance (Grade B, strong consensus at 93 percent)2. For protein it states that intake in older people should be at least 1 g of protein per kg body weight and day (Grade B, strong consensus at 100 percent)2.

Two warnings about what to do with that. First, these are guiding values for a population, and adjusting them for one person with several conditions is exactly the professional judgement a dietitian is for. Second, do not turn them into a target you enforce at the table. The fastest way to make meals worse is to make them a test somebody is failing.

What the numbers are genuinely useful for is asking better questions: whether the person has been screened, what their intake is estimated at, whether a dietetic referral has been made, and what the plan is if intake does not improve.

How much should an older person actually be drinking?

More than most carers assume, and the target is expressed in drinks rather than in total fluid, which is where nearly everybody goes wrong.

ESPEN’s recommendation is that older women should be offered at least 1.6 L of drinks each day, and older men at least 2.0 L of drinks each day, unless there is a clinical condition that requires a different approach (Grade B, strong consensus at 96 percent)2. Those figures come from an adequate intake of 2.0 L and 2.5 L a day from all sources, assuming that about 80 percent of it arrives as drinks2. If you take the all-sources figure and treat it as the drinks target, you understate what should be offered by roughly a fifth, and that is a common and consequential mistake.

Note the verb in the recommendation. It is “offered”, not “drunk”. Thirst is an unreliable guide in older people, so the practical work is offering rather than reminding: a drink put into a hand at fixed points in the day does more than any amount of encouragement to drink more. Dehydration is worth taking seriously in its own right, because it contributes to confusion, constipation, urinary problems and falls, which is a list of the things most likely to bring the whole arrangement down.

The opposite instinct, cutting drinks to manage continence, is covered in continence and keeping dignity, and the short version is not to do it on your own initiative.

What if they cough at meals, or their voice sounds wet afterwards?

That is a swallowing problem until somebody qualified says otherwise, and it belongs to an assessment rather than to trial and error in your kitchen.

The signs to report are specific: coughing or throat-clearing during or just after eating and drinking, a wet or gurgling voice afterwards, food staying in the mouth or being held in the cheek, meals taking far longer than they used to, weight loss alongside any of that, chest infections that keep coming back, and a person who has become frightened of eating and has started avoiding it.

The assessment is carried out by a speech and language therapist in the United Kingdom, Ireland and Australia, and by a speech-language pathologist in the United States and Canada. The named routes: in the United Kingdom and Ireland, a referral through the GP practice or the community team; in the United States, therapy under Medicare home health, which requires the person to be homebound, to need part-time or intermittent skilled services, to have a face-to-face certification, and to be served by a Medicare-certified agency4; in Australia, through My Aged Care, the single entry point to Australian Government funded aged care and to the assessment that establishes eligibility5; in Canada, through the provincial home and continuing care programme, which varies by province.

This page will not tell you to thicken a drink, change a texture, or use a technique at the table. Those are outputs of an assessment, chosen for one person’s swallow, and getting them wrong has consequences that are worse than the problem. A new or suddenly worse swallowing difficulty is a same-day call.

Why has the food stopped working?

Because eating is not only about appetite, and almost everything around the meal is modifiable while appetite itself largely is not. This is the section that turns a frustrating problem into a list of things to check.

What you noticeHow fast it arrivedWhat it may meanWho to ask
Stopped eating or drinking altogetherHours to 2 daysInfection, pain, constipation, a new medicine, deliriumRing today
Coughing at meals, wet voice, repeated chest infectionsDays to weeksUnsafe swallowGP or primary clinician, for speech and language therapy
Eating less, leaving favourites, meals taking longerWeeks to monthsMouth or teeth, taste change, medicines, low mood, fatigueGP or primary clinician, for a review and a dietitian
Weight down, clothes and rings looseWeeks to monthsUnintended weight loss, cause unknownGP or primary clinician, for screening and a dietitian
Refusing food from you specificallyAnyAutonomy, timing, or the meal having become a battlegroundChange the setup first, then ask

The things that reliably change what gets eaten are unglamorous: company at the table, the time of day the appetite is best, portions that do not look like a demand, contrast between the food and the plate so it can be seen, teeth and dentures that fit, a mouth that is not dry or sore, pain controlled before rather than after the meal, constipation dealt with, low mood taken seriously, and the sheer physical effort of eating when someone is exhausted. Medicines sit underneath several of those, which is why a structured medication review belongs on the list: NICE recommends considering one for people taking multiple medicines, people with long-term conditions and older people, taking into account the person’s and carers’ views and concerns6. Managing someone else’s medication covers how to ask for that.

Then there is the part nobody writes down. Cooking for someone you are caring for stops being cooking and becomes an emotional transaction, and a plate that comes back untouched starts to read as a rejection of you rather than as a symptom. It is worth naming, because a carer who is hurt cooks differently: more anxiously, more insistently, and with more at stake at every meal, which is exactly the atmosphere in which somebody eats less. Among the 10,539 carers who responded to Carers UK’s self-selecting 2025 survey, which Carers UK states is not a representative survey, 74 percent had felt stressed or anxious7. Mealtimes are one of the places that lands.

When do I stop cooking harder and ask for a referral?

At the first sign, not at the point of visible thinness. The trigger for a referral is the change, not its severity, and the referral costs you a conversation.

Ask for one when any of these is true: unintended weight loss of any amount; clothes, rings or dentures becoming loose; a month or more of reduced intake; new coughing at meals or a wet voice afterwards; a refusal that is new for that person; or repeated chest infections. Ask the GP or primary clinician for a dietitian, and for speech and language therapy where the swallow is involved, and ask at the same time for a structured medication review6.

Two reasons not to wait, both of which sit elsewhere on this site. Poor intake and weight loss make skin damage more likely, and NICE’s pressure ulcer guidance lists nutritional deficiency among the risk factors that should trigger a skin assessment8: see preventing pressure sores. Weakness and weight loss also feed into falls, and around a third of people aged 65 and over, and around a half of people aged 80 and over, fall at least once a year, with a one-year mortality rate after a hip fracture of 31 percent (NICE guideline NG249, published 29 April 2025, England)9: see falls at home.

Getting heard is its own skill, particularly when the answer you keep receiving is that this is to be expected at their age. Take the weight chart, the dates, and the specific request. Being heard in appointments covers the ten minute slot, and who does what: GP, district nurse, social worker sets out which professional owns which part of this. If arranging any of it is beyond what you can manage alone, getting help in is the map of what exists.

What about appetite loss at the end of life?

It is a different problem, and treating it as the same one causes real distress. Carers arrive at this page from both directions, so it needs saying plainly.

Appetite loss caused by something treatable is a reason to investigate and to feed. Appetite loss late in an irreversible illness is part of the illness rather than a failure of catering, and pushing food and fluid at that stage can cause discomfort without extending anything. The two situations look similar across a kitchen table and are told apart by the clinical picture, not by how much is left on the plate, which is precisely why this is a conversation to have with the clinical team rather than a decision to make alone at nine at night.

BAPEN’s survey found the highest malnutrition risk by condition among people with cancer, at 62 percent of those screened1, and a good deal of that population is being cared for at home. This site does not try to answer the end-of-life version here: palliative care at home explains what palliative care is and when it starts, which is usually much earlier than families expect, and the last weeks covers what changes and what not to be frightened by. In dementia, swallowing and intake difficulties belong to the later stage of the course, which dementia care at home sets out.

This is a call today, not a better recipe

Most of this page is about referrals to arrange. This part is not. Ring the same day, and lead with what they were eating or drinking a week ago against what they are managing now, if the person you look after:

  • Has stopped eating or drinking, or has cut down sharply over a day or two.
  • Is more confused than they were yesterday, or the confusion comes and goes through the day10.
  • Has become withdrawn, slow or drowsy, with reduced appetite, which is the quiet form of delirium and, in NICE’s words, one of the changes that are often missed10.
  • Has started coughing at meals, has a wet or gurgling voice after drinking, or is short of breath after eating.
  • Has passed no urine, or their urine has gone dark and scant.
  • Has a new fever, new pain, or a mouth that is dry, sore or ulcerated.
  • Has had a fall, which weakness and poor intake make more likely9.

Who to ring: in the United Kingdom, their GP surgery, or NHS 111 out of hours. In Ireland, their GP or the out of hours GP service. In the United States, their own doctor’s office, or the nurse line their plan runs, or an urgent care centre. In Australia, their GP, or healthdirect on 1800 022 222. In Canada, their family doctor or the provincial health line, 811 in most provinces. Elsewhere in the European Union, their own clinician.

Use the emergency number immediately for changed breathing, chest pain, one-sided weakness, changed speech, a first seizure, an unrousable person, or bleeding that will not stop: 999 or 112 in the United Kingdom and Ireland, 911 in the United States and Canada, 000 in Australia, 112 across the European Union.

Choking, or food going down the wrong way with distress and breathing difficulty, is an emergency call rather than a same-day one. Everything else on that list is a phone call you are entitled to make about somebody eating less than they were, and the two months I spent cooking harder instead of making it are the two months I would take back.

Common questions

Is losing weight normal in old age?

Losing weight without meaning to is not normal and is not something to absorb quietly. It is one of the more reliable signals that something has changed, and the change may be an illness, a medicine, a mouth problem, low mood, pain or a swallowing difficulty. What makes it useful information is the trend rather than a single reading, which is why a carer who weighs weekly and writes the number down produces something no clinician can obtain any other way. Clothes and rings loosening count as evidence too, and are worth reporting even when nobody has a set of scales.

How much should an older person drink each day?

More than most carers assume, and the target is expressed in drinks rather than total fluid. The ESPEN 2022 practical guideline on clinical nutrition and hydration in geriatrics states that older women should be offered at least 1.6 L of drinks each day and older men at least 2.0 L, unless a clinical condition requires a different approach. Those figures derive from an adequate intake of 2.0 L and 2.5 L a day from all sources, on the assumption that about 80 percent comes from drinks, so treating the all-sources number as the drinks target understates it by roughly a fifth.

What does it mean if someone coughs while eating or drinking?

It may mean the swallow is no longer safe, and it needs assessing rather than experimenting with. The signs to report are coughing at meals, a wet or gurgling voice after drinking, food staying in the mouth, meals taking much longer, chest infections that keep returning, and a person who has become frightened of eating. The assessment is done by a speech and language therapist, or a speech-language pathologist in the United States and Canada, and the referral goes through the GP or primary clinician. A new or sudden difficulty is a same-day call, not a texture experiment at home.

How common is malnutrition risk in older people at home?

In BAPEN's 2022 UK Survey of Malnutrition Risk and Nutritional Care, 45 percent of all adults screened across UK health and care settings were at risk of disease-related malnutrition, and by setting the figures were 56 percent for people screened in their own homes, 55 percent in care homes and 44 percent in hospitals. Of those screened, 24 percent were underweight and 26 percent had unplanned weight loss. These are proportions of adults screened in a voluntary survey rather than a population prevalence, so they describe the people who were screened and not the country.

When should I ask for a dietitian instead of trying harder at home?

Earlier than most carers do. Any unintended weight loss, clothes or rings becoming loose, a month of reduced intake, any new coughing at meals, or a refusal that is new for that person all justify a referral. Ask the GP or primary clinician for a dietitian, and for speech and language therapy where swallowing is involved. Ask at the same time for a structured medication review, which NICE recommends considering for people taking multiple medicines, people with long-term conditions and older people, because taste change, dry mouth, nausea and appetite loss are ordinary medicine effects.

What if they have stopped eating altogether?

A sudden stop in eating or drinking is a same-day phone call rather than something to watch overnight, because the causes that arrive that fast are usually treatable: infection, pain, constipation, a mouth or tooth problem, a new medicine, or delirium. Reduced appetite is one of the changes NICE tells clinicians to be particularly vigilant for as possible hypoactive delirium, alongside withdrawal, slow responses, reduced mobility and worsened concentration, and it says these are often missed. Say what they were eating a week ago and what they are eating now, with dates.

References

  1. UK Survey of Malnutrition Risk and Nutritional Care, BAPEN. ↩
  2. ESPEN practical guideline: Clinical nutrition and hydration in geriatrics, Clinical Nutrition (ESPEN). ↩
  3. Introducing MUST, BAPEN. ↩
  4. Home health services, Medicare.gov. ↩
  5. My Aged Care, Australian Government Department of Health and Aged Care. ↩
  6. Medicines optimisation (NG5), National Institute for Health and Care Excellence. ↩
  7. State of Caring 2025: The cost of caring, Carers UK. ↩
  8. Pressure ulcers: prevention and management (CG179), National Institute for Health and Care Excellence. ↩
  9. Falls: assessment and prevention in older people and in people 50 and over at higher risk (NG249), National Institute for Health and Care Excellence. ↩
  10. Delirium: prevention, diagnosis and management in hospital and long-term care (CG103), National Institute for Health and Care Excellence. ↩

Written by Maura Kinsella. Medically reviewed by Dr Nadia Farhat, MBBS, MRCP.

Our guides are written from personal experience and reviewed by a qualified clinician for accuracy. Read our editorial policy.

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